The road continues to get bumpier but that shouldn't be a surprise, should it? I had two days or so of realtive comfort, and them started getting some swelling in my left leg and ankle. Then Sunday I started getting pain right at the edge of my ribcage on the right. By Monday night it was pretty uncomfortable to take a deep breath, but I already had a Tues follow up so we waited and went over it all w Dr Margolin on Tues a.m. After looking at everything we think the side pain is because of all the stuff in the liver that is getting irritated by the bloating, etc. As in the past, all we can do is try to relieve it, so we bumped up the morphine dose again and added something for a diuretic to keep the swelling at bay. Now I'm at 45mg of slow release with the 15mg fast plus steroid. Plus somethimg for the consitpation (yuck), that has yet to work.
Getting things going with hospice and have a meeting at my place tomorrow (Wed) a.m. Hoping I can get some help with household duties like laundry and cleaning maybe, and I now they can do lots of other stuff, too. I have a cleaning person every other week, but combining duties would make things better, I think. I do have home nursing available if I need it and they may be able to guide my on that when the time comes. Should be an interesting meeting!
My model car is turning out to be a godsend, because it gives me something to do and think about that I enjoy. Fishing is out (two of my buddies are hitting the rivers for steelhead as I write this), because I can't wade, but goofing off with my Alfa is perfect. I'm going to start painting the chassis in the next day or two and will post more pics.
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